September 19, 2025

Thought I would check in with an update from this week's treatment. Reminder that this was a 25% reduction and no follow-up shot. I'll try to be brief.

This round was definitely not as bad as the first round... but still no walk in the park.

Treatment was Monday, today is Friday. I've worked from home all week for one reason or another. Monday night/Tues morning was sleep deprived due to intense hot flashes... I mean sweating...my eye mask was wet from sweat. Makes for a dismal night of trying to sleep. Needless to say, Tuesday I was tired and had a headache. 

They prescribed me a take-at-home nausea preventative that they would normally give in my IV before treatment, but since it can cause drowsiness and dizziness, they didn't want to risk it with me having to drive home. So, I picked it up and took it Tuesday night, before bed as directed.... As tired as I already was from little sleep the night before, I was in bed before 8 and asleep not long after. Can't really tell ya if it was the meds that knocked me out, exhaustion or both. 

Wednesday morning I got up thinking I was going to work... wrong. I was super dizzy and way off balance just trying to walk to the bathroom. The more awake I became, I began to feel jittery on the inside too. These are reasons I do not take meds. As for the after-affects of treatment.... the onset of yuck mouth began, along with the sore neck and shoulders... the feeling like my head is too heavy. Pretty sure I tried eating everything for a couple of reasons - to absorb the new script I took and make the side effects leave, I was hungry, and eat while things still tasted good.

Wednesday night/Thursday morning my body decided that I needed to go potty.... so around 1am I was in the bathroom. Yay. Thought I would get a little sleep since the night sweats weren't nearly as bad. Guess I thought wrong. Just as I crawled back in to bed and get comfy, my body decided it had other plans. Back into the bathroom. I did manage to grab a few more hours of sleep before finally giving up around 5something, but that's how Thursday went... back and forth to the potty. I don't dare take anything to stop it for fear of constipation. Honestly, from someone who's dealt with both, I'd rather not have constipation. 

Thursday also brought with it the more intense muscle stiffness and aches... mostly my upper body... nothing near what I felt last time, but I will say that if you touch my sides, chest, neck, upper back.. places in that region, it's very tender and sore. Enough that I soaked in the bath tub last night for at least 30 minutes. It didn't help, but thought I would try. Oh yeah, Thursday also welcomed back the full blown yuck mouth and the trips upstairs to brush my teeth relentlessly. 

And here we are on Friday morning.... Again with the middle of the night potty trips (to pee this time), hot and cold flashes.... again waking up tired... this morning was a bit worse tho. I don't know if it's all catching up to me or med related honestly at this point, but this morning I woke feeling very tired, emotional, cranky, irritated, and down right pissed off. Drink some coffee and hope that helps....Between trips to the bathroom, stepping over a variety of things in the floor enroute, the dogs being glued to me extra this morning....  

It did not help. 

I should have been a better version of Kira by this point. I was not. I felt like I could go back to sleep, honestly. So, I closed my laptop and went back to bed. (Anyone that knows me, knows that once I'm up, that's it. I'm up. We don't go back to bed. We don't take naps.)

I did not actually fall back asleep, but I guess I laid in the bed with my eyes closed for about 20 minutes, contemplating life I think..

While I don't feel as sleepy right now, and I'm working on my second cup of coffee, I do feel very irritated...borderline angry...And my upper body is still as sore and tender as yesterday... and I feel very bloated... and there's still the frequent potty trips..... 

This is certainly not the bad reaction I had before, but I really think these stupid meds are enhancing what are just normally irritations into things that are making me very angry. Think I'm going to put in my time for work and then go run errands... basically put myself in time out...